So...I didn't get to bed til 5 am...woke up at 9 am...only 4 hours of sleep. I finally just left a message of one of my primary care doctors to try to get something. Dr. Rider had given me ambien but it isn't doing to well and he said he really didn't know many more, because he doesn't deal with a lot of that. He had told me to contact my primary, but it has just been so crazy.
Very moment right now my head feels like someone smashed it against a brick wall. My stomach is just rumbling and I'm getting aggravated. My eyes are still really black...that will go away with time. Oh yes...disappointment this morning. I use to be the President of our Student Campus Ministries in College. Well our teacher that was our representative's daughter has come down with leukemia and it is to the point of no return almost. They had a bone marrow drive today to check for matches...my dad and mom were going and I was like I bet I can't...then I started thinking about it and I was like dang...who wouldn't want my immune system...leukemia is dealing with the white blood cells...and mine work amazing so maybe I should go and try. You already know my disease is autoimmune so my immune system is superman and is what is killing my body...ok...so I get excited and we go up there...I see Mr. and Mrs. Gaillard...then I read the sign...if you have an autoimmune disease you cannot participate. I got tears in my eyes. I wanted to actually feel like I could help someone and bam...couldn't...so everyone the most I can do for Jamie (their daughter) is ask you all to pray! and pray that someone that went today will be a perfect match!
Also...I have met a friend through blogging and her name is Kelly. I truly believe God brought us together because she too suffers with a chronic/severe diagnosed Crohn's Disease. She is in the hospital right now with an attack and I ask that you all lift her up in prayer...it is so nice to have someone who understands EXACTLY what you are going through. So in your spare time just lift her name up!!
So as of now this is my Friday...I am plopped on the couch with mr. miyagi waiting for the headache to subside. I had to run to the bathroom a second ago becuase I just got sick and started gagging again...didn't throw up but sure almost did...I have no clue what is going on...
I am going to see BOTH Dr. Rodriguez an Dr. Rider the 24th of this month. With Dr. Rodriguez we will discuss the Remicade and figure out what my routine needs to be and if the dosage needs to be raise...we have pretty much already figured out that I will need it sooner than most people...Dr. Rider was saying about every 6 weeks when most get it every 8...I'm thinking every 4...because that is when my body starts doing its crazies...so...that will be with Dr. Rodriguez. With Dr. Rider we will reassess my internal fissure and check it..make sure its not a fistula...see its size again...see if its healed no healed...all of that...if it is still there this time I'm pretty sure we are going to do the surgery so it doesn't matter to me really...whatever I have to do to get better I'm all for it!
Ok my sweet blogging friends...be blessed :) I love you all and thank you all!!!!